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The Fabry community is ready to demand more.

Sign up for updates and the Webinar Video Series below. You'll receive important information that can help you Rethink Fabry disease—and rediscover what's possible.

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This program is intended for US residents only. Are you a US resident?*

We're sorry, but this program is intended for US residents only.


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Please tell us a little more about yourself or the person with Fabry you care for.

These responses are optional, but they will help us provide you with the most useful and appropriate information and resources for managing Fabry disease.

Have you, or has someone you care for, been diagnosed with Fabry disease?

Please answer the following questions as they apply to the person with Fabry disease.


Which best describes your current approach to treating your Fabry disease?

How would you describe the current status of your Fabry disease?
[Check all that apply.]

Which best describes your current experience treating Fabry disease by infusion?
[Check all that apply.]

How strongly do you agree or disagree with this statement?
“I am comfortable with the time and effort I devote to treating my Fabry disease and receiving infusions.”

Which best describes your current experience treating Fabry disease with oral medication?

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