Patients & Caregivers | Go to Healthcare Professionals Site

These free webinars are designed for patients by patients.

Women and Fabry Disease: Strategies to Advocate for your Daughter Women and Fabry Disease: Strategies to Advocate for your Daughter Women and Fabry Disease: Strategies to Advocate for your Daughter

Strategies to Advocate for Your Daughter

Fabry disease may often be thought of as a "boy's or man's disease." Upon learning that a daughter has been diagnosed, many parents feel fear about the future. In this webinar, an expert and a group of parents discuss topics around the unique set of challenges they have overcome, from understanding differences, to helping daughters manage through self-image, addressing barriers to treatment, and advocating in school and within the healthcare system.

Tuesday, June 21, 2022
8:00 - 9:00 PM ET

Guest Speakers

Dawn Laney Dawn Laney Dawn Laney

Dawn Laney, MS, CGC

Genetic Counselor/Assistant Professor
Emory University
Atlanta, Georgia

Christy Flater Christy Flater Christy Flater

Christy Flater

West Valley City, Utah

Tami Lence Tami Lence Tami Lence

Tami Lence

South Jordan, Utah

Sarah Willis Sarah Willis Sarah Willis

Sarah Willis

Harvest, Alabama

Growing Up and In to Fabry Growing Up and In to Fabry Growing Up and In to Fabry

Growing Up and In to Fabry

Whether you are from a Fabry family or you are a Fabry "first," receiving a Fabry disease diagnosis can be daunting. In this webinar, an expert and a group of individuals in their teens through thirties provide helpful tips for processing your Fabry diagnosis, taking ownership of your health, understanding treatment, and learning how to navigate the healthcare system as you transition to adulthood.

Tuesday, June 21, 2022
8:00 - 9:00 PM ET

Guest Speakers

Kait Miller, MS, LCGC

Certified Genetic Counselor
University of Washington Pediatrics
Seattle, Washington

Rowan Bauer

Provo, Utah

Travis Cannon

Lake Dallas, Texas

Britney Lence

South Jordan, Utah

During these webinars, you will hear from experts and individuals with Fabry disease who will share their experiences and strategies for managing the disease.

At the conclusion of each program, you will have the opportunity to ask our panel questions.

If you or someone you care for has Fabry disease, you won't want to miss these conversations.