Patients & Caregivers | Go to Healthcare Professionals Site

These free webinars are designed for patients by patients.

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A HOLISTIC APPROACH

Fabry disease affects every part of life: the body, mind, and soul. In this webinar, a group of individuals with Fabry will discuss holistic strategies they use to manage the challenges of living with Fabry disease.

Available at two convenient times:

Thursday, September 30, 2021 | 7:30-8:30 PM ET
Saturday, October 2, 2021 | 12:00-1:00 PM ET

Watch Recording

Guest Speakers:

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Maurice Alvarez Maurice Alvarez Maurice Alvarez

Maurice Alvarez

Corona, California

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Sean Gibbons Sean Gibbons Sean Gibbons

Sean Gibbons

Winchester, Virginia

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Rowena McCullough

Kent, Washington

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The Women The Women The Women

THE WOMEN'S VIEW

For years, Fabry disease was often seen as a "man's disease." In this webinar, a group of women discuss topics around the unique set of challenges they've faced, from the struggle for acceptance, to overcoming barriers to proper care, to family planning and managing guilt associated with passing on this genetic disease.

Tuesday, November 30, 2021
8:00-9:00pm ET

Guest Speakers:

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Robert J. Hopkins, MD Robert J. Hopkins, MD Robert J. Hopkins, MD

Robert J. Hopkin, MD

Cincinnatti Children's Hospital Medical Center
Cincinnati, Ohio

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Lisa Berry Lisa Berry Lisa Berry

Lisa Berry, LGC

Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio

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Heather Flater Heather Flater Heather Flater

Heather Flater

West Valley City, Utah

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Christy Flater Christy Flater Christy Flater

Christy Flater

West Valley City, Utah

Mandie Hagel

Regina, Saskatchewan

Mandie Hagel Mandie Hagel Mandie Hagel

Mandie Hagel

Regina, Saskatchewan

During these webinars, you will hear from individuals living with Fabry disease who will share their experiences and strategies for managing the disease.

If you or someone you care for has Fabry disease, you won't want to miss these conversations.