A HOLISTIC APPROACH
Fabry disease affects every part of life: the body, mind, and soul. In this webinar, a group of individuals with Fabry will discuss holistic strategies they use to manage the challenges of living with Fabry disease.
These free webinars are designed for patients by patients.
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Available at two convenient times:
Thursday, September 30, 2021 | 7:30-8:30 PM ET
Saturday, October 2, 2021 | 12:00-1:00 PM ET
Guest Speakers:
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Maurice Alvarez
Corona, California
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Sean Gibbons
Winchester, Virginia
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Rowena McCullough
Kent, Washington
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THE WOMEN'S VIEW
For years, Fabry disease was often seen as a "man's disease." In this webinar, a group of women discuss topics around the unique set of challenges they've faced, from the struggle for acceptance, to overcoming barriers to proper care, to family planning and managing guilt associated with passing on this genetic disease.
Tuesday, November 30, 2021
8:00-9:00pm ET
Guest Speakers:
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Robert J. Hopkin, MD
Cincinnatti Children's Hospital Medical Center
Cincinnati, Ohio
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Lisa Berry, LGC
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio
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Heather Flater
West Valley City, Utah
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Christy Flater
West Valley City, Utah
Mandie Hagel
Regina, Saskatchewan
Mandie Hagel
Regina, Saskatchewan
During these webinars, you will hear from individuals living with Fabry disease who will share their experiences and strategies for managing the disease.
If you or someone you care for has Fabry disease, you won't want to miss these conversations.