Strategies to Advocate for Your Daughter
Fabry disease may often be thought of as a "boy's or man's disease." Upon learning that a daughter has been diagnosed, many parents feel fear about the future. In this webinar, an expert and a group of parents discuss topics around the unique set of challenges they have overcome, from understanding differences, to helping daughters manage through self-image, addressing barriers to treatment, and advocating in school and within the healthcare system.