Patients & Caregivers | Go to Healthcare Professionals Site
Fabry disease may often be thought of as a "boy's or man's disease." Upon learning that a daughter has been diagnosed, many parents feel fear about the future. In this webinar, an expert and a group of parents discuss topics around the unique set of challenges they have overcome, from understanding differences, to helping daughters manage through self-image, addressing barriers to treatment, and advocating in school and within the healthcare system.
Genetic Counselor/Assistant Professor
Emory University
Atlanta, Georgia
West Valley City, Utah
South Jordan, Utah
Harvest, Alabama
Whether you are from a Fabry family or you are a Fabry "first," receiving a Fabry disease diagnosis can be daunting. In this webinar, an expert and a group of individuals in their teens through thirties provide helpful tips for processing your Fabry diagnosis, taking ownership of your health, understanding treatment, and learning how to navigate the healthcare system as you transition to adulthood.
Tuesday, June 21, 2022
8:00 - 9:00 PM ET
Certified Genetic Counselor
University of Washington Pediatrics
Seattle, Washington
Provo, Utah
Lake Dallas, Texas
South Jordan, Utah
During these webinars, you will hear from experts and individuals with Fabry disease who will share their experiences and strategies for managing the disease.
At the conclusion of each program, you will have the opportunity to ask our panel questions.
If you or someone you care for has Fabry disease, you won't want to miss these conversations.